‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise
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‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise

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Oonagh Cousins had simply been pre-selected for the Tokyo Olympics when she was hit with Covid in March 2020.

A new virus which might go on to have far-reaching penalties for the entire world was one thing that originally simply felt like a gentle chilly to her.

It was solely when the now-28-year-old was unable to participate in vigorous coaching workout routines along with her rowing crew that the fact of her lengthy Covid signs dawned on her.

“I realised then, I was in it for the long haul,” she tells The Independent.

Nearly 4 years on and lengthy Covid has compelled Oonagh, from Brentford, to fully retire from rowing due to the crippling signs.

Oonagh Cousins has retired from rowing fully

(Oonagh Cousins)

Now, researchers have discovered that lengthy Covid could cause extreme muscle harm and different issues if sufferers participate in intense exercise or bodily and psychological exertion.

The research revealed in Nature Communications in contrast 25 sufferers with lengthy Covid and 21 individuals who had suffered from the virus and made a full restoration.

To management for another components, all of the individuals had been match and wholesome earlier than contracting the virus, had been of working age and none had been hospitalised with the sickness.

Participants had been requested to take biopsies earlier than and after biking to evaluate the influence of exercise on their our bodies.

The research discovered that these with lengthy Covid skilled restricted capability for exercise, way more tissue harm, microclots, metabolic dysfunction and post-exertional malaise.

While there was appreciable variation between individuals, these with lengthy Covid had a decrease exercise capability, on common, than wholesome individuals.

It additionally discovered that the mitochondria in individuals with lengthy Covid didn’t work in addition to those that had totally recovered – and that the operate of mitochondria was worsened after exercise.

Oonagh, an envoy for the Long Covid Support Group whose story was used within the closing statements of a part of the Covid inquiry, welcomed the research.

“It’s great we’re getting the research to prove what patients have known for a very long time,” she mentioned. “This idea that exercise is good is so drilled into us.

“When you can’t even walk to the shops and struggle to do the dishes, the idea that exercise could be helpful is clearly bonkers.

“Unfortunately it takes research for people to really listen so I’m really glad that we now have the evidence to prove that.”

She had been pre-selected for the Tokyo olympics earlier than being compelled to retire attributable to lengthy Covid

(Oonagh Cousins)

Claire Higham, 47, can now not work attributable to her lengthy Covid signs. She instructed The Independent that she was “completely thrilled” on the research.

Claire, who runs the Long Covid Advocacy Group, says that one of many main issues is individuals’s disbelief at how poorly sufferers actually are.

“A lot of people aren’t aware of things like post-exertional malaise. We’ve not had the physical evidence to back up the patient testimony,” she mentioned.

“People know this, exercise and exertion hurts and makes us deteriorate. We’ve been saying this.

“Now we have the evidence to verify this, people are going to be believed and it can build on more research to show that our mitochondria aren’t working and microclots are an issue and so on.”

She says that sufferers are sometimes given exercise and exercise as a remedy for the situation, which the research now reveals can exacerbate and worsen signs. She has needed to minimize off her hair as it’s too exhausting to clean it and has to relaxation 19 hours a day with the intention to operate for 5.

Claire Higham was compelled to chop off her hair because it was too strenuous to clean it

(Claire Higham)

Dr Rob Wüst, an creator of the research at Vrije Universiteit in Amsterdam instructed The Guardian that the findings highlighted that individuals with lengthy Covid should not undertake intense exercise.

“It damages your muscles, it worsens your metabolism, and it can explain why you feel muscle pain and fatigue up to weeks after the exercise,” he mentioned.

It’s a difficulty that 46-year-old Robin Timms from Leicester may be very conscious of. He works a bodily strenuous job at a big grocery store the place he’s required to stroll over 10,000 steps a day. He says he’s misplaced practically a stone since working with lengthy Covid however has no different selection.

“I’m a picker who collects items that people order online. I no longer do the offloading of the vans, and I find that I walk at a much slower pace.”

Robin and his spouse Cheryl tried to use for Personal Independence Payment, the federal government’s incapacity advantages so he may scale back his hours or have a time off.

He was rejected attributable to the truth that he nonetheless labored and the couple really feel the situation isn’t coated adequately sufficient in incapacity legislation.

Cheryl and Robin have been married for ten years and hope Robin will have the ability to take the time he must relaxation

(Cherly and Robin Timms)

“I’m really, really angry,” Cheryl instructed The Independent. “We’ve been married nearly ten years and I’ve seen his health deteriorate so much with this. He has brain fog and we can’t do anything outside of work, eat and sleep.

“This could be the next dementia or Alzheimer’s. People are getting worse because there’s so much misunderstanding around it by employers and everyone.

“I went to the Covid inquiry when Boris Johnson called long Covid ‘bollocks’, it really angered me. I’m happy the research is out but what will they do with it? They need to do something with it.”

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