Two women with heart disease had to fight for a prognosis. Here’s how they advocated for their health

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Heart disease is the main reason behind loss of life within the U.S., but specialists agree the situation is usually misdiagnosed in women.

For American Heart Month, medical doctors and sufferers are talking out to assist be sure that women’s signs get life-saving consideration and therapy.

Dr. Philip Adamson, chief medical officer of Abbott’s Heart Failure Division, stated women are sometimes identified with anxiousness or melancholy when they are wanting breath or expertise fatigue — when the true wrongdoer is heart failure.

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“Women can also be diagnosed with these conditions when they present with fast heart beats or ‘palpitations’ that can be the result of abnormal heart rhythms,” Adamson, who relies in Austin, Texas, advised Fox News Digital.

Woman heart doctor

For American Heart Month, medical doctors and sufferers are talking out to assist be sure that women’s signs get life-saving consideration and therapy. (iStock)

“Several objective studies found that there is a systematic bias that leads doctors to misdiagnose coronary heart disease and heart failure in women.”

Studies have proven women are 52% extra possible to have a delay in prognosis than males when presenting with a heart assault, in accordance to Dr. Bradley Serwer, a heart specialist and chief medical officer at ImportantSolution, a Cincinnati, Ohio-based firm that provides cardiovascular and anesthesiology companies to hospitals.

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“Because heart disease may be under recognized in women, studies have shown that they receive less aggressive treatment,” Serwer advised Fox News Digital.

“Women even have a decrease illustration in scientific trials assessing therapies for heart assaults than males.”

Here’s what to know.

Carol Pollard / Tina Marston

Carol Pollard (left) and Tina Marston (proper) each skilled misdiagnoses that put their lives in danger. Fox News Digitals spoke to the women about their experiences and why they’re encouraging others to advocate for their personal health. (Carol Pollard / Tina Marston)

Heart disease signs chalked up to getting old

Carol Pollard, 79, who lives in San Jose, California, is all too acquainted with the hazard of misdiagnosis. Just a few years in the past, when the grandmother began feeling out of breath and really fatigued, she — and her medical doctors — at first chalked it up to getting older.

“My husband and I went to five cardiologists — and all five misdiagnosed me,” she advised Fox News Digital in a cellphone interview.

Pollard was finally identified with mitral valve regurgitation — in any other case generally known as a leaky valve — which is when the valve would not shut tightly and blood flows backward into the heart. 

She was positioned on a number of medicine, however none of them helped a lot with her respiration points.

Carol Pollard

Carol Pollard, 79, was initially advised that her signs have been possible associated to getting older. As it turned out, she had a leaky heart valve and a uncommon heart disease known as cardiac amyloidosis. (Carol Pollard)

“At the time, the team of doctors couldn’t decide whether I was a little crazy or whether I was having panic attacks,” Pollard stated.

“They planted that seed of doubt and I said to myself, ‘You have to listen to them,’” she went on. “So I went on the drugs they wanted me to go on, but I still couldn’t breathe.”

It was solely later, when she was having further checks to discover alternate therapies for the leaky valve, that Pollard realized she had one other situation that everybody had missed.

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“A heart biopsy finally gave us a diagnosis that all of them had missed, which is, I have a rare heart disease called cardiac amyloidosis,” Pollard stated. 

With cardiac amyloidosis, a protein known as amyloid builds up within the heart, which prevents it from functioning because it ought to.

“A rogue protein that developed in my bone marrow transferred into my blood and then attacked my heart, kidneys and GI tract,” she stated.

Abbott Technologies lab

Pollard (proven above, simply barely left of heart) had the chance to go to the Abbott Technologies lab in California, the place she met the staff who made the MitraClip gadget that she credit with saving her life. (Abbott Technologies)

The solely therapy for the situation was chemotherapy, which Pollard acquired for a yr.

“They finally got me into remission, but I still couldn’t breathe due to the leaky valve,” she stated.

Eventually, a physician launched Pollard to Abbott Laboratories, a medical merchandise firm that produces the MitraClip. It’s small gadget that clips the valve collectively and prevents blood from flowing again into the heart.

After a lengthy street of testing and pre-qualifications, Pollard underwent the mitral valve process.

“The team of doctors couldn’t decide whether I was a little crazy or whether I was having panic attacks.”

“The day after [the surgeon] put that clip in my heart, I could breathe again for the first time normally in I don’t know how long,” Pollard stated. “I was so elated and amazed and happy that when my daughter arrived at the hospital, we actually danced in the hospital room.”

Today, Pollard is feeling “pretty good,” though her cardiac amyloidosis is again. She nonetheless will get chemo as soon as a month for that situation and sees her common heart specialist and hematologist each few months.

Pollard’s respiration is okay thanks to the MitraClip, which she calls a “miracle procedure that saved my life and my sanity.”

Symptoms blamed on being pregnant and pinched nerves

Tina Marie Marston, 49, additionally had a lengthy journey to her heart prognosis.

When she was 28, the Georgia mom began experiencing signs of heart failure throughout being pregnant — fluid retention, shortness of breath, excessive nausea and vomiting.

“I was just so sick throughout that pregnancy and nothing seemed to be alarming [the doctors],” she advised Fox News Digital in an interview. “It was just like, ‘Oh, you’re pregnant. This is just what happens.’”

Tina Marston

Tina Marston’s heart disease warning indicators have been misdiagnosed as being pregnant results and, later, a pinched nerve. “I always felt like something was off.” (Tina Marston)

Even months after giving start, Marston stated she “just never felt right — I always felt like something was off.”

In 2002, Marston returned to the hospital to get her signs checked. 

“I remember the doctor listening to me with a stethoscope, but he didn’t run any type of X-rays or do any bloodwork,” she stated. 

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The physician advised Marston she had “a touch of walking pneumonia,” then gave her a prescription and stated to enable three days for it to work.

“On the second day, I called a friend and I said I have to go back to the ER, because if I go to sleep, I’m not going to wake up,” she stated.

That was when the medical doctors found that Marston had a gap in her lung, congestive heart failure, full-blown pneumonia and postpartum cardiomyopathy — which is heart failure that happens between the final month of being pregnant and 5 months after supply. 

Tina Marston

Tina Marston is now an lively advocate for women’s heart health and an LVAD ambassador for Abbott Technologies. (Tina Marston)

“The doctor told me not to come back for three days, but I came back two days later,” she stated. “What would have happened if I hadn’t come back?”

After spending a few days within the ICU, Marston was discharged and adopted a complete new way of life, with a concentrate on heart-healthy vitamin.

Just a few years later, in 2010, she skilled one other life-threatening misdiagnosis. When Marston went to the hospital with excruciating leg ache, she was advised it was a pinched nerve — however days later, medical doctors realized her legs have been riddled with harmful blood clots that had to be surgically eliminated.

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“I could have lost both legs,” she stated. “I had no blood flow for at least a week.”

In her late 30s, Marston acquired an LVAD (left ventricular help gadget) — the HeartMate II by Abbott — a gadget that helps the heart pump blood from its decrease chambers to the remainder of the physique.

To assist different women going through the identical struggles, Marston lately based a nonprofit known as the Tina Marie Marston Foundation. She can be a legislative advocate for the Georgia American Heart Association.

Preventing misdiagnoses

While it’s troublesome to put a quantity on how many instances of women’s heart disease go misdiagnosed within the U.S., Adamson stated it’s “common.”

“Objective studies have found there is a medical bias that women are at low risk for developing heart problems,” he famous. “This bias exists for all cardiovascular diseases, from coronary issues to late-stage heart failure.”

woman with pain in chest

“Women’s health is a very important issue and requires self-advocacy to find the right medical provider who recognizes the bias,” a physician advised Fox News Digital. (iStock)

“The bias is particularly common in women who suffer from a unique type of heart failure that arises because the heart is stiff and cannot adequately relax, which the medical community calls ‘heart failure with preserved ejection fraction,’” Adamson stated. 

“Many women with this type of heart failure, especially women of African descent, downplay their symptoms or don’t seek care because they are busy caregivers who often also work outside the home,” the physician famous.

To forestall probably lethal misdiagnoses, Adamson emphasised the significance of women being their personal advocates.

“Many women … downplay their symptoms or don’t seek care because they are busy caregivers who often also work outside the home.”

“Women’s health is a very important issue and requires self-advocacy to find the right medical provider who recognizes the bias,” he advised Fox News Digital.

“Tina [Marston] is a great example of someone who knew something was wrong and advocated for appropriate treatment,” he stated. “She would not let the system blow her off — instead, she took things into her own hands and found what was available on her own.”

Older woman with doctor

A physician burdened the significance of discovering the appropriate supplier who understands how to correctly handle all danger components for heart disease. Marston and Pollard additionally urged women not to hesitate to ask questions. (iStock)

The physician stated it’s important to discover the appropriate supplier who understands how to correctly handle blood strain, ldl cholesterol, diabetes, weight management and different danger components – together with genetics – for growing early heart disease.

“I can’t emphasize enough how important it is for women to be aware of their health and partner with health care providers who have overcome the typical biases leading to misdiagnoses,” Adamson added.

“Sometimes the problem is anxiety, but make sure all options have been considered. We need to care for the amazing heart.”

Woman chest pain

A heart specialist famous that not all women will expertise traditional signs like chest ache. “Be aware that heart attack symptoms for women may include shortness of breath, abdominal pain, nausea or just not feeling right,” he advised Fox News Digital. (iStock)

Serwer, the Ohio heart specialist, additionally famous that not all women will expertise traditional signs like chest ache.

“Be aware that heart attack symptoms for women may include shortness of breath, abdominal pain, nausea or just not feeling right,” he advised Fox News Digital.

The physician additionally urged women to pay attention to their particular person dangers for growing heart disease and begin making modifications early. 

Studies have proven women are 52% extra possible to have a delay in prognosis than males when presenting with a heart assault, a heart specialist stated.

“Know your medical conditions and your family history,” Serwer suggested. “Sit down with your health care team to help identify ways to reduce your risk. Don’t wait until after you have a heart attack to start treating your high blood pressure, ldl cholesterol and diabetes.”

If signs do come up, the physician stated, don’t ignore them.

Blood pressure

“Don’t wait until after you have a heart attack to start treating your high blood pressure, cholesterol and diabetes,” a heart specialist suggested. (iStock)

“Seek medical attention and raise the concern that you may be afraid you’re having a heart attack.”

To different women, Pollard’s recommendation is to “listen to your body — because I wasn’t listening to mine.”

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She advised Fox News Digital, “I think many times, women are misdiagnosed because they don’t pay attention to themselves. There’s that ‘no pain, no gain’ mentality … I think we are given these messages that teach us to ignore the signals of our body,” she stated. 

“Our body is very smart, and when it’s telling you something is wrong, you need to listen to it.”

Heart attack

“I think many times, women are misdiagnosed because they don’t pay attention to themselves,” one heart affected person advised Fox News Digital. (iStock)

“I take part of the blame for taking so long to be diagnosed because I wasn’t taking my pain seriously,” she added.

“Being out of breath and terribly fatigued is not necessarily a part of getting old.”

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Marston suggested women to “never second-guess yourself” and to by no means hesitate to ask questions.

“It should be a partnership where you’re working together with your doctors,” she stated. 

“You should have a team that accepts questions without any hesitation.”

For extra Health articles, go to www.foxnews.com/health.

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